Original Article
JBCGenetics. 2020; 3(2): 60-70

Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country

Authors: Khadijah Bakur, Jumana Al-Aama, Zuhair Alhassnan, Helen Brooks, Tara Clancy, Saud Takroni, Fiona Ulph.

View PDF HTML Fulltext DOI: 10.24911/JBCGenetics/183-1596638212

Abstract

Background: Religion/spirituality plays a vital role in most aspects of Muslims' lives. However, there has been little research on the part of religion/spirituality in health professionals' clinical experience with patients with genetic disorders, including long QT syndrome. Methods: This qualitative study explored health professionals' views working in Saudi Arabia concerning the role of Islam in their clinical practice. Semi-structured interviews were undertaken with 12 health professionals from two cardiogenetic centers in Saudi Arabia. Results: The participants included clinical geneticists (4/12), genetic counselor (1/12), molecular geneticists (2/12), cardiologists (3/12), and patient coordinators (2/12). The data were analyzed using thematic analysis, and three main themes were identified: (1) the value attributed to religion/spirituality in the context of genetic counseling, (2) professional and patient-level barriers to formal religious assessment and conversations in the context of genetic counseling, and (3) incorporating religion/spirituality into genetic counseling sessions. Conclusion: The study sheds light on the advantages of using informal religious language to establish rapport and build trust between patients and health professionals in genetic counseling. It also draws attention to the importance of exploring patients' willingness to discuss religious issues. Participants identified a lack of appropriate training as a significant barrier to attending to patients' religious/spiritual needs during genetic counseling.

Keywords:   Islam, religion/spirituality, genetic counseling, Saudi Arabia, long QT syndrome, lived experience


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Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country


Authors
Khadijah Bakur
School of Biological Science, Faculty of Biology, Medicine and Health, University of Manchester, United Kingdom
PubMed articlesGoogle scholar articles

Jumana Al-Aama
Department of Genetic Medicine, King Abdulaziz University Hospital, Saudi Arabia
PubMed articlesGoogle scholar articles

Zuhair Alhassnan
Princess Al-Jawhara Centre of Excellence in Research of Hereditary Disorders, King Abdulaziz University, Saudi Arabia
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Helen Brooks
Princess Al-Jawhara Centre of Excellence in Research of Hereditary Disorders, King Abdulaziz University, Saudi Arabia
PubMed articlesGoogle scholar articles

Tara Clancy
Department of Genetic Medicine, Faculty of Medicine, King Abdulaziz University, Saudi Arabia
PubMed articlesGoogle scholar articles

Saud Takroni
Department of Medical Genetics, King Faisal Specialist Hospital and Research Center College of Medicine, Alfaisal University, Saudi Arabia
PubMed articlesGoogle scholar articles

Fiona Ulph
Institute of Population Health Sciences, University of Liverpool, United Kingdom
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Correspondence to:
. Khadijah Bakur, School of Biological Science, Faculty of Biology, Medicine, and Health, University of Manchester, United Kingdom, Department of Genetic Medicine, King Abdulaziz University Hospital, Saudi Arabia, Princess Al- Jawhara Centre of Excellence i; K.bakur@gmail.com

Publication history
Received 05 Aug 2020
Revised 13 Sep 2020
Accepted 18 Sep 2020
Published in print 30 Sep 2020

How to cite this article

Pubmed Style

Bakur K, Al-Aama J, Alhassnan Z, Brooks H, Clancy T, Takroni S, Ulph F. Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. JBCGenetics. 2020; 3(2): 60-70. doi:10.24911/JBCGenetics/183-1596638212


Web Style

Bakur K, Al-Aama J, Alhassnan Z, Brooks H, Clancy T, Takroni S, Ulph F. Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. https://www.jbcgenetics.com//?mno=121467 [Access: January 19, 2021]. doi:10.24911/JBCGenetics/183-1596638212


AMA (American Medical Association) Style

Bakur K, Al-Aama J, Alhassnan Z, Brooks H, Clancy T, Takroni S, Ulph F. Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. JBCGenetics. 2020; 3(2): 60-70. doi:10.24911/JBCGenetics/183-1596638212


Vancouver/ICMJE Style

Bakur K, Al-Aama J, Alhassnan Z, Brooks H, Clancy T, Takroni S, Ulph F. Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. JBCGenetics. (2020), [cited January 19, 2021]; 3(2): 60-70. doi:10.24911/JBCGenetics/183-1596638212


Harvard Style

Bakur, K., Al-Aama, . J., Alhassnan, . Z., Brooks, . H., Clancy, . T., Takroni, . S. & Ulph, . F. (2020) Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. JBCGenetics, 3 (2), 60-70. doi:10.24911/JBCGenetics/183-1596638212


Turabian Style

Bakur, Khadijah, Jumana Al-Aama, Zuhair Alhassnan, Helen Brooks, Tara Clancy, Saud Takroni, and Fiona Ulph. 2020. Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. Journal of Biochemical and Clinical Genetics, 3 (2), 60-70. doi:10.24911/JBCGenetics/183-1596638212


Chicago Style

Bakur, Khadijah, Jumana Al-Aama, Zuhair Alhassnan, Helen Brooks, Tara Clancy, Saud Takroni, and Fiona Ulph. "Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country." Journal of Biochemical and Clinical Genetics 3 (2020), 60-70. doi:10.24911/JBCGenetics/183-1596638212


MLA (The Modern Language Association) Style

Bakur, Khadijah, Jumana Al-Aama, Zuhair Alhassnan, Helen Brooks, Tara Clancy, Saud Takroni, and Fiona Ulph. "Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country." Journal of Biochemical and Clinical Genetics 3.2 (2020), 60-70. Print. doi:10.24911/JBCGenetics/183-1596638212


APA (American Psychological Association) Style

Bakur, K., Al-Aama, . J., Alhassnan, . Z., Brooks, . H., Clancy, . T., Takroni, . S. & Ulph, . F. (2020) Role of religion/spirituality in the context of genetic counseling: health professionals' experiences in an Islamic country. Journal of Biochemical and Clinical Genetics, 3 (2), 60-70. doi:10.24911/JBCGenetics/183-1596638212


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